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Understanding SMA (Spinal Muscular Atrophy) - Living With It and Next Steps

5/3/2018

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This post is part of the General "Understanding SMA (Spinal Muscular Atrophy)" series of posts. Therefore, to understand the full concept, we will break it down into parts. This part will discuss living with it and next steps: 
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  • It is important, under medical guidance, to perform as much physical activity to maintain a well being lifestyle;
  • It is paramount to ensure flexibility and prevention of joint stiffness;
  • Water therapy is a common practice used;
  • Physical therapy and occupational therapy programs help with the lifestyle;
  • Research in this field continues to advance. There have been experiments, done on mice, that show improvement of motor functions and increase chances of survival. As per curesma.org, they continue to monitor the progress towards a cure. As per their website, "the research model funds drug programs at all stages of development. These basic research ideas are then converted into practical drug candidates through drug discovery. Finally, those drug candidates move through the clinical trial process. The drug pipeline monitors each individual program as it moves through these stages".
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